January the 17th

Let me tell you a story.

When I was 16 I was in a wreck with my first car. Crumpled the front end of my beloved old Dodge. There I am on the side of the road wondering what I’m gonna do and suddenly my Dad shows up. There were no cell phones back then, news just spread through the grapevine like that back then. He asked me if I was all right, then told me “It’s just a car, it can be fixed, son.”

A wrecker pulled it home, and Dad brought me to the house. I had to work that night down at Big Daddy’s grocery, but I didn’t want to go. My dad told me “Having a wreck doesn’t mean you don’t have to go to work. You still have responsibilities.” So when it was time he came back and picked me up for work and took me.

As soon as I could I had my car pulled around back of the house at the garage. After finally prying the hood open I saw all the front end damage. the whole doghouse of the car was pushed up into the motor, and the radiator fan was was all the way up in the motor. I had no idea what to do. I tried pry-bars, hammers, and everything else to pull the front end back out, but I was stumped. I had no idea how to work on cars!

So here comes my dad walking from the house when I had reached my wits end. He takes a look at the front end under the hood and says “You can take a come-a-long winch and wrap it around that tree over there and pull this back out straight.” He showed me where I would need to chain things off, and explained how he would do it. It was the end of the day, I had done everything I could do, and I didn’t have a winch or even really know what a come-a-long was.

So I get home from school the next day and sitting right inside the door of my room on the floor was a come-a-long winch, a brand new one. I called mom at the salon and asked her about it, but she had no idea. Dad had already gone to the mines for second shift, and she said “I guess your dad must have picked it up for you.”

I took my brand new winch, read the directions, and like magic I pulled the front end of that car back out. My old man had known exactly what to do, and his directions had worked like a charm.

Now that I had the radiator back where it was supposed to be I was able to start pulling off all the bent up body panels, so I went digging through my dad’s tools in the garage to find what I needed. I had no idea what I was doing, but it seemed pretty self explanatory. Take out all the bolts, and pull the bent fenders off.

Nope, nothing is ever that simple.

The next day I go to school, and when I get home sitting where the winch had been was a cardboard box full of tools. They were your basic variety-store cheap tools, but there was a bit of everything. Ratchet sets, screwdrivers, pliers, vise grips, and wrenches. Once again I called the salon to ask mom, because dad was under ground on second shift. I got the same answer. “I don’t know, must have been your dad.”

I worked on that car every chance I got. When I wasn’t at school, work, or whatever sports practice, game or tournament, I was out trying to get that car apart so I could put it back together. I — for the first time — had my own tools, and I was learning as I go.

I started having trouble getting some of the last front end pieces off, I simply didn’t understand how it had went together, and I was getting stumped. I don’t know if I said something about it to dad (That’s been almost 30 years ago now) or he was going out and checking on my progress while I was at school, but sure enough I cam home from school one day and sitting in my room was a huge Chilton’s manual for my car. It was the “Everything you need to know to fix everything on the car” book, and it was specifically for my model of car. Dad had struck again with what I needed.

With that book I was able to get my car all apart — and when I had new parts from a junkyard — put it all back together again. Every other problem I had later, as is with old cars, with a bit of advice from dad, that book and those tools, I was able to do everything I needed to do.

That teenage experience with that old mopar car and my dad taught me a lot about living life. Bad things can happen, but you still have responsibilities. If you don’t how to do something, open up a book or manual and learn.If your going to do something, make sure you have the proper tools, and when all else fails ask some advice from someone who has more knowledge than you. (And also, give your kid his own tools so he stays out of yours!)

My dad is the smartest man I know, and is one hell of a mechanic. He could have just as easily pushed me to the side and fixed my car for me, but he didn’t. Instead, he gave me the knowledge, the tools, and the advice to do it myself. He let me do it myself. If I had asked for him to help or fix it for me he probably would have, but I am glad I didn’t. I learned so much more fixing that old car on my own.

The whole of my adult has been much the same. something in my life gets wrecked up, and I take responsibility and fix it. If I don’t know how, I find a book and get the knowledge. If I don’t have the proper tools, I find them. When I can’t get it figured out on my own, my dad still has the answer if I ask. I don’t always listen to — or like — his advice, but that doesn’t mean it’s wrong, even to this day.

Especially this day, because this day is my Dad’s Birthday. He is a year older, a year wiser, and I am sure as hell glad he is still around to let me fix my own wrecks.

Happy Birthday, Dad. I love ya.
Neil

Amazing Grace

Per request, the content of this post has been deleted. To replace it, I give you a beautiful young lady singing a song of hope, faith, and redemption.

[youtube=//www.youtube.com/watch?v=HsCp5LG_zNE&w=560&h=315]

I hope you enjoyed.

Are you holding onto a grenade?

I would like all of my amputee readers to take a look at this video. It is by Ash Beckham, who happens to be a member of the GLBT community.

What does a gay woman have to say that would be relevant to an amputee? Well, give Ash’s speech a listen. It certainly hit home with me, especially when it comes to people asking me questions about my legs and fingers!

[youtube=//www.youtube.com/watch?v=kSR4xuU07sc&w=420&h=315]

Control Freak

Being an amputee has it’s challenges. Being a control freak and being an amputee can be much worse. I like to write about the good and the bad, but I try to navigate my words toward the good side of the scale more often. I have written about my time in the hospital, but not overly so.

Something has come to light for me recently that has made me take a hard look at myself, and my psyche. Like I said, I am a control freak. I always have been… I like things done my way, and I like things done on my terms. This part of me made me really great and also really bad at some of the things in my life. Put me in the hospital, though, and you take all of my control away.

I never realized just how horribly this has affected me until I recently had a panic attack while with a friend. It was such a horrible outburst by me that I nearly ended a friendship with someone I respect and think very highly of. But how did my time in the hospital bring this on?

I spent three months in a hospital, lying on my back. I wasn’t allowed to go to the bathroom. I wasn’t allowed to get out of bed. Hell, I couldn’t get out of bed. If I wanted to take care of bodily functions I had to push a button and ask someone if I could…. Then I had to wait for them to come help me do it. The control freak had lost all control of everything that was happening to him.

I experienced a mini-coma after one of my surgeries, and before I was even really awake someone at the hospital tried to get me to drink some water. It went down the wrong way… Heck, I wasn’t even awake yet and had no idea where I was at. I choked on it. This left me with nearly three weeks of drinking coffee the consistency of honey, and getting all my water by sucking it out of a sponge on a stick. Really, if I was thirsty, I had to suck it out of a sponge.

I didn’t even have control over my own hydration.

Actually, the only real decision I had while I served my time in the hospital was when my legs would going to come off. My options were have more tests that were going to tell me my feet were dead and live with more agonizing pain, or go ahead and get it over with. Some choice, eh?

I once had to argue with a nurse about being allowed to have a bowel movement in a hospital bathroom without her standing over me watching. I. Kid. You. Not. I had to be ugly enough with her to make her cry before she would step outside the bathroom. As I look back now, that little outburst was probably a very small panic attack.

For many amputees the hospital stay is not nearly so long and protracted as mine was. That does not make me tougher –or better — but it does make me different.

Before I was a bad passenger in vehicles other people were driving…. Now I am a complete asshole who freaks out when others do even slightly unsafe things…

Before I was a guy who hated having to take my shoes off for airport security…. Now I get so torn up inside abut being made to stand to one side — and have a stranger put their hands on me and search me — that I can’t think straight…

Before I hated not being in control….. Now, my mind literally can not handle when control is taken from me.

I just aced two psychology classes in past semesters at college and it has still taken me until now to realize that I am exhibiting classic signs of agoraphobia and panic disorder. I hope that realizing this is an issue for me will help me recognize when it is happening and keep me from making an ass of myself or hurting the feelings of others in the future.

Why am I blogging about this? Because if it has happened to me, then it will happen to someone else…. And perhaps reading this will help another amputee who had all their control taken away from them… and perhaps they can get help if they need it..

And perhaps I am blogging about this to tell my friends and family that I know I am over the top sometimes, but I will try to be better about it in the future. And maybe this is also an apology to a friend who didn’t deserve to see me freak out on them……

Hello. My name is Neil, and I am a recovering control freak.

Mad Scientist? Mad Skillz!

So life is back on track after a nearly week long trip to Orlando for the ACA Conference. I am just now getting back to a somewhat normal sleep schedule, and have finally gotten the “After Conference Boredom Blues” in check. I met a lot of awesome people and groups at the ACA, and I want to acknowledge everyone I can in a series of posts about the great work they are doing, or simply the great people they are.

Today the person and organization I want to share with you is the company prostheticInk.com, and it’s founder Dan Horkey.

Photo Courtesy of Kitsap Sun 2008

I met Dan late in the evening of my first night there.  He had recently sent a friend request to me on FaceBook, and I was pretty stoked about it. See, in the amputee world the guy is kinda famous, and the art he produces is amazing! When I met him, that’s pretty much what I said to him. I was surprised by his response to me, which was I was the famous one! I disagree, but that ought to tell you something about this man. He has a great attitude, and is totally down to earth about who he is.

And who he is… well he is an amputee who has put himself out there to help other amputees. Dan, through his company Prosthetic INK, provides one of a kind artwork for amputee prosthetics, both veteran and civilian. Wearing a prosthetic can be a hard thing, both emotionally and physically. “Able-Bodied” individuals tend to stare, and it can cause very awkward situations when they are talking about the weather but in their mind they are screaming “YOUR LEG! YOUR LEG!”

Prosthetic tattoo art provides self esteem, but it also provides an ice-breaking moment. It –among other things– allows the elephant in the room to be discussed. Instead of getting looks of pity and a sorrowful “I’m so sorry you don’t have a leg,” you get a look of awe and surprise and “wow, that is the coolest looking leg ever!”

That can make all the difference in the world to an amputee. We don’t want pity. We don’t need sorrow… We have already moved past that. Dan helps us express that with his artwork.

[youtube=//www.youtube.com/watch?v=L532Uoxlpow&w=560&h=315]

See? Cool stuff, right?

Instead of a plain old prosthetic socket, or a none-too-realistic heavy cover, you could have something like this!

This is just a sampling of the great work Dan Horkey and Prosthetic INK can do.

For those able bodied who read my blog, you may not understand the significance… But an amputee seeing this will be drooling right now!

Dan has gone from the basics above, to doing high tech chrome in every color you could imagine!

Not only that, but while at the conference I got to take a sneak peek at a prototype cover Dan has designed that will both fill out that ever-present slimness around the lower leg area that amputees get when wearing pants, and also provide protection to components of the prosthetic…. All without that dreaded silicone cover look.

Dan can do just about any design you could imagine on prosthetic devices as well as orthotic devices.

So, if you get a chance, go check out Prosthetic INK, or do like I do and follow Dan on Twitter.

 

 

 

Fingers 2.0

Everyone I talked to at the conference seemed to be amazed with my prosthetic fingers that I make in my garage. I am working on a *ahem* “next generation” set of fingers for myself, and lots of people asked me to share…. So, here is my work in progress on my Fingers 2.0

[youtube=//www.youtube.com/watch?v=sVR7SFnFJaE&w=560&h=315]

Gina accepts no compromises!

[This is a re-print of a FB post from my friend Gina, who like me is a retired amputee FF/EMT. Gina is an amazing person, and when I read her post I asked her if I could reprint it on my blog.. she of course said yes. I keep telling her she needs her own blog, and she says she doesn’t know how.. well, this post says otherwise to me! Enjoy…. N]gina pic

k, so…by now many of you have realized that I went away to Orlando to an Amputee Coalition Conference. Now, it looks like we just fooled around cutting up and being silly…and at times, we did. What I’d like to speak to next, is when we weren’t.
I met people with lots of heart, nerve, compassion, and yes, comedic genius these past few days. Everyone has a story, some more horrific than others. But each personal and life changing for them, their families, and friends. They came from 42 states and 3 countries (I believe was the stat) . They came alone, with families, and some even brought pets. All for one purpose. To be bigger than what happened to us. To be connected in our journey. To genuinely feel empathy and gather strength and acceptance in numbers.Those who followed my status’ of thankfulness know I learned to swim again, went to yoga, did a handstand, shower without a chair, met some very profoundly unique people who educated me with language and cultural barriers, and the highlight of my trip…wait for it….I RAN! I ran like the friggin’ wind! It was amazing! It was quite possibly my aha moment to jettison me from here. Pretty sure I’m still high on that feeling tonight.

So, why the picture below you ask? Well, those of you who truly know me, are aware of my “Happenstance” theory that people and events that are MEANT to be connected, are. That events, actions, people, run-ins, whatever…exhibit a bigger picture of connectedness that place happenstance in seemingly unrelated situations all leading to a bigger purpose. Well, the theme of this years event was a Sea of PossAbilities. Get it? Clever on their part, I know! So anyway, there was a little whale placed in everyone’s room, and at the dinner their we’re starfish all over the tables. I took this as confirmation of my theory (as if I needed it).

Remember the story of Jonah and the Whale? Jonah was asked to perform God’s will and warn the Ninevites. A task he evaded, hence being swallowed by the whale. While in the belly of the whale, he was thankful for being saved as he was drowning in the ocean. For 3 days and nights he’s thankful. Never questioning his fate. Not so sure I could be as dedicated, but ultimately the whale spews him out to carry on his work. Now, I’m not incredibly religious or preachy, but I’ve always been fascinated by that particular story and the more complex aspects of why he was intimidated to do what he had to do and why, but found it relative to my moment. Just as freaky, is my understanding of the story of the Starfish. From my teaching days, I remember (as perhaps many of you) the story of how a boy walks along tossing starfish washed upon the beach back into the ocean. A man asks him what he’s doing, explains that the beach is several miles long with hundreds of starfish, and that it won’t make a difference. The boy aptly replies as he picks up another starfish tossing it gently back into the ocean, that it makes a difference to THAT ONE.
Now, I’m not sure what my purpose is exactly. I know I’m a mom, wife, daughter, sister, friend, etc. I’ve lost my identity in my career (for now) and spend entirely too much time with chickens. But…if I remain thankful while I anxiously await direction, help those who need saving while on my path, and focus on how the things that lead me here…today…matter now, I’m sure I will be ok. Call it a stretch if you like, but to me…it was dead nuts on. I refuse to compromise who I am because of the limitations I’ve had to face. If the universe has a challenge, I say bring it…and it best wear a cup!

[Authored by Gina Kothe, and reprinted with permission]

Having a blast at the ACA Conference!

So I am walking my butt off, meeting lots of people, and having a generally awesome time!

Lots of Facebook friends are now real friends, and I have met so many inspirational people!

When I have a moment to sit down with my iPad (I’m on my iPhone one thumb tapping right now!) I will give you some of the low down and web links to the great people I am interacting with!

Good stuff, good stuff!

The Prosthetic Lottery

I haven’t posted in a while, life has been hectic… Tonight I had to make time to post, as I have a few things on my mind that I really feel need to be addressed.

 

We have soldiers from the military coming home as Wounded Warriors.. Some are amputees, some have PTSD, but they all have been changed due to the ravages of war. We recently had a bombing at the Boston Marathon that left several dead, hundreds injured, and many of those injured became new amputees.

 

Now, according to all the regular ol’ amputees out there in this country, it is unfair that these highly publicized wounded warriors and bombing victims are getting brand new state of the art equipment and prosthetics. Amputees over on the ACA facebook page are — for lack of a better word — whining because they can’t have what these new amputees are getting. (thread is here)

 

Personally, I feel this is deplorable behavior from my fellow amputees. How must our veterans (or bombing victims) feel if they were to read one of these threads? To go online to find support from people who have been there only to find that they are being ridiculed and complained about because they have something “better?” How would you feel?

 

Pretty damned horrible, I would imagine.

 

The problem I am finding after reading so many of these venomous posts is that everyone likes to complain and throw stones, but no one wants to advocate for themselves! How do you expect to get ANYTHING if you wont push for it? No one is going to hand you the best of the best just because you sit there and look pitiful… fight for what you want.. Or shut your whiny-ass mouth.

 

How dare anyone begrudge another human being having their life made better?

 

Would you begrudge your neighbor if they won the lottery? Would you tell them that they don’t deserve it? Would you cry because it is unfair that you didn’t get a winning lottery ticket as well? Yea, I thought not.

 

The bottom line here is that you must advocate for yourself, because the chances of the media picking up your story is very low. You can sit at home and be mad that a soldier who stepped on an IED and had both legs blown off got brand new microprocessor knees… Or you can start talking to your prosthetist… you congressman… Your senator… Hell, the ACA and other groups will help you get better equipment if you would just get off your hind end and fill out the proper forms and make the right phone calls…

 

Stop waiting to win the Prosthetic Lottery… And stop crying every time someone else does win it. In the end, we are all amputees… and right now your whiny-ass has made me ashamed to be associated with you.